Your Responses and Advice . . .

The purpose of this workshop is to discuss the social, economic, health care, quality of life and other issues for adults with sickle cell disease. The workshop objectives are:

1. To identify and describe the unmet needs of adults with SCD, specifically: their social and economic problems and needs; their quality of life issues; their information and educational problems and needs and those of their providers; and their health care problems and needs.
2. To begin a strategy development process that sets objectives for health, health care and information for adults with SCD, and information for their providers; and that crafts research initiatives to better understand the problems and needs of adults with SCD.

The Workshop Planning Committee identified four topics that are important for adults with sickle cell disease, and are to be discussed at the workshop. Next to each topic is a space where you can enter your advice and opinion about that topic. Your advice will be aggregated with opinions expressed at the workshop, and included in the workshop report. (No identifiers will be included.)

Your responses may be sent through the online form (below) or by letter, email, or fax to the appropriate address, email address, or fax number listed below.